Rhabdomyosarcoma and Relationships: Supporting Your Partner Through Treatment

• by Zander Whitlock
• Jul, 16 2023

Understanding Rhabdomyosarcoma

Rhabdomyosarcoma, often abbreviated as RMS, is a type of cancer that develops from the skeletal muscle cells. It is relatively rare and is most commonly diagnosed in children, although it can affect people of all ages. Being diagnosed with rhabdomyosarcoma can be overwhelming for both the patient and their loved ones. It's a life-changing event that requires a great deal of strength, patience, and support.

The Emotional Impact of Rhabdomyosarcoma

A rhabdomyosarcoma diagnosis is not just a physical burden; it also carries a significant emotional toll. The patient may experience fear, anxiety, and depression, which can affect their overall wellbeing and their ability to cope with the disease. As a partner, it's essential to be aware of these emotional challenges and provide the necessary support.

Supporting Your Partner Emotionally

Emotional support is key when your partner is dealing with rhabdomyosarcoma. It's important to listen to their feelings and fears, and to reassure them that they are not alone in this journey. It may also be beneficial to seek professional help, such as therapy or counselling, to help manage the emotional strain.

Supporting Your Partner Physically

Rhabdomyosarcoma patients often experience physical discomfort and fatigue due to the disease and its treatments. As a partner, you can provide physical support by helping with daily tasks, encouraging rest, and ensuring they are following their treatment plan. It's also crucial to encourage a healthy lifestyle, as proper nutrition and regular exercise can help improve their overall health and wellbeing.

Communicating with Your Partner's Healthcare Team

As a partner, it's important to be involved in your loved one's healthcare. This includes attending appointments, understanding the treatment plan, and communicating with the healthcare team. This can help ensure that your partner is receiving the best possible care, and it can also provide you with a better understanding of their condition and what to expect.

Dealing with Treatment Side Effects

The treatments for rhabdomyosarcoma, such as chemotherapy and radiation, can cause various side effects, including nausea, fatigue, and hair loss. As a partner, you can help manage these side effects by providing comfort, preparing nutritious meals, and helping with personal care tasks. It's crucial to communicate with the healthcare team about any side effects, as they may be able to suggest ways to manage them.

Planning for the Future

A rhabdomyosarcoma diagnosis can make the future seem uncertain. However, it's important to remain hopeful and to plan for the future. This can include discussing fertility preservation options, making financial plans, and considering psychological support for coping with the long-term effects of the disease.

Maintaining Your Own Wellbeing

While supporting your partner through their rhabdomyosarcoma treatment, it's vital to also take care of your own physical and emotional health. This can include maintaining a healthy lifestyle, seeking support from friends and family, and taking time for self-care. Remember, you can't pour from an empty cup, so taking care of yourself is also a way of supporting your partner.